First and most importantly, it means having hope that only comes from Jesus Christ. It means that no matter what this life may bring, we have assurance of a beautiful ending. Jesus said, “In this world you will have trouble. But take heart! I have overcome the world!” (John 16:33) It means standing on God’s promises. It means fighting with faith, courage, strength and perserverance. It means having peace and joy through trials. It means always having hope and never giving up. It means loving others, serving others, and showing compassion for those in need. It means you are never alone. It means being loved, supported, and carried in the most difficult and painful of circumstances. It means praising God through the storm. It means accepting the Lord’s path for your life. It means living with purpose. Paxton was a very special little boy who embodied all of these things. Everyday, as his mother, I am reminded to keep living, keep loving, keep fighting like Paxton.
Paxton Seneri's first symptoms began in December 2010 with a fever, nausea, vomiting, lethargy, weakness, and irritability. He was admitted to the hospital and underwent testing for Spinal Meningitis and other illnesses that could have been causing these type of symptoms. A MRI revealed that Paxton had a tumor growing at the base of his brain and he underwent emergency surgery to remove the bulk of the tumor. Due to the placement of the tumor, the surgery effected Paxton's motor abilities. Over the next couple months, Paxton began his journey of recovery from surgery as he worked to gain strength in preparation for the necessary treatment ahead.
January 26, 2011- by Corey Perrott (Paxton's Aunt) "So it has been since my husband's birthday since Ive posted...It has been a little hectic and I think that by not blogging about Paxton, I was not acknowledging that this is actually happening. Paxton had a bad cold and ear infection in November. He was losing weight (we thought it was because of the cold). He started vomiting when he started taking the antibiotic. December 11th, Christi and Barry took him to the ER for fluids (it was a Saturday). By Sunday Morning, he had been diagnosed with Meningitis. By Sunday Night he had brain cancer. He was taken to UNC Sunday night where they drained fluid off his brain. Monday morning he went in for brain surgery. They removed most of his tumor, but he will have to go through Chemo until July. He has been doing well with the chemo, sick on his stomach, but well. He is recovering from each treatment a little slower than predicted, but he is only almost 3 years old. He is a fighter, and I have no doubt he will be fully restored by God. Please Pray for little Paxton."
March 11, 2011- by Corey Perrott (Paxton's Aunt) "Paxton had his second MRI today, three months exactly after the first MRI gave us such terrible news. Today gave us news only God could provide. The entire tumor that was on his brain is GONE! He still has two spots on his spine, but both are SMALLER! The doctor and radiologist were both amazed! God is truly at work in this little man! To God be the Glory! Paxton will still have to undergo the heavy Chemo with the stem cell replacement. Each treatment will take 3 weeks or so in the Cancer Center. We think that there will be 3 treatments. Keep those prayers coming!"
March 21, 2011- Facebook
update by Christi Seneri
"Oh, what a wonderful month it has been at home! We continue to praise God
for the great news of Paxton's MRI (Doctors were astounded, ecstatic, amazed,
etc...), enjoyed some beautiful spring days playing w/ brother, sister, &
cousins, played at grandma's & Aunt Coco's, and just enjoyed being at home
w/ our family of 5 and sleeping in our own beds. Paxton is getting stronger and
is walking better and better (w/ a little help). So... now it's time to get
back to the fight, and this time we're bringing out the big guns! Paxton will
be admitted to the Bone Marrow Transplant Unit in the Cancer Hospital at UNC on
3/24. He will have 2 days of heavy chemo, then a day of rest, followed by a
stem cell transplant. They are expecting his counts to be wiped out and he will
have to stay in the unit until they recover, which is expected to be about 3
weeks. Paxton will go through this cycle 3 times over the next 3 months. Please
pray for strength and endurance for our family and that this chemo will clear
out any and all cancer that remains in his body w/ minimal side effects. Thank
you for your continued love, support and prayers!"
March 28, 2011- Facebook
update by Christi Seneri
"Thank you for all of your well-wishes and continued thoughts & prayers.
Paxton has completed the chemo for this round and will be getting his stem cell
transplant today. He is feeling a little yucky today and counts have dropped
significantly, as expected. He continues to bless everyone around him w/ his
sweet spirit, joy, and light that continues to shine through it all. Things are
pretty strict around here. He's been unable to leave his room due to a little
cold. He asks to go to grandma's everyday. We make the most of our
time watching movies, playing games, reading books, and playing w/ toys. I
appreciate those of you who have asked about care pkgs. Cards and anything that
can be wiped down w/ antibacterial wipes would be permitted."
April 8, 2011- Facebook post by Christi Seneri "Today is going great! Paxton woke up to see great numbers for his WBC, has been up and walking, playing with play-dough, Skyping with Grandma, Grandpa, Coco, Miley, and Lia, and playing doctor. Right now, he is playing with his physical therapist. He's also been able to cut down some on his nausea meds while keeping down his feeds. We are preparing to go home on Sunday to get a little break (about a week and 1/2) before we come back for the next chemo and transplant April 21. Life will be a little different for the next few months after his last transplant while Paxton's immune system is getting back to normal. We will have to be very careful not to come in contact with anyone who is or has recently been sick, stay out of public places, wear a mask for hospital & clinic visits, hand-wash like crazy, be careful about raw fruits and veggies, keep the house super clean, stay out of dirt and away from freshly mowed grass, etc. One transplant down, two more to go We are just so blessed to have all of you praying for him and our family! No matter how hard the battle, we know who has the victory!"
April 21, 2011- Facebook post by Christi Seneri
"Well, we are settled back in the BMT unit and Paxton is finally napping.
He has been a little ball of energy today! - playing tickle monster with the
Nurse Practitioner, walking around the halls, being a silly jokester. I tell
you what, he is one feisty little guy! It is great to be able to get out
in the hall now that he is off precautions and see the other patients. I know
little Paxton will be such a blessing to them all. Our nurse today pretty much
summed it up when he said, "This kid is unbelievable!" : Please join
us in praying for Paxton as he continues his fight. None of this suffering
compares to the joy that's coming! We praise God for all of the miracles He has
done through Paxton thus far and for all He will continue to do!"
Psalm 40:3 He has put a new song in my mouth - praise to our God; many
will see it and fear, and will trust in the Lord.
April 28, 2011- Facebook post by Christi Seneri
"What an awesome day! Paxton started out by trike riding around the halls,
rode a scooter and walked w/ his physical therapist (who commented that he
would be walking w/out the walker soon!), made art on the ipad w/ the art
therapist, finger painted and played building blocks w/ the rec therapist, had
a visit w/ Mimi and Braydon, chased the Drs down the hall on his trike
again.... The amazing thing is, he's been like this the whole time we've been
in the hospital for this round of treatment! He is so full of life and energy!
(They had told us it would be harder on him each time.) Paxton continues to
gain strength with each round of treatment! Dr. Hipps said he was doing so
well, he wasn't sure if he actually gave him the chemotherapy! :) Praise God!
Yesterday, Paxton was being so silly and such a little rascal. I said,
"Well, I think I've got my little boy back." Paxton said, "You
do? Who was holding me?" My response... "Jesus."
June 2, 2011- Facebook post by Christi Seneri "As our time in the Bone Marrow Transplant Unit comes to an end, various people have come by to tell us what Paxton means to them. Nurses are blessed by his pleasant and joyful demeanor and his silly personality. Drs. come by to exam him and end up staying in the room to play for half an hour because they don't want to leave. Patients who didn't have the will to get out of their beds found the inspiration to get up and about, because " If that little guy can get through this, so can I." People have told us how much it means to see his sweet smile as he pedals his tricycle around the halls. Even the food people have been inspired by him. Paxton has been through so much. More than most of us have to endure in a lifetime. But he doesn't complain. He doesn't dwell on the negative. He continues to have joy through this trial, contentment no matter what the circumstances, strength and courage to face and overcome whatever obstacles come his way. Oh, how we could all learn so much from this precious little gift of a child.
Thank you, God, for the joy that only comes from you in times like these. Thank you for giving Paxton the temperament and personality that allows him to shine his light in the most trying of times. Thank you, that he can have contentment regardless of his circumstances. And thank you for the prayer warriors who have stood with us from the beginning as we fight the good fight!"
June 29, 2011- Facebook post by Christi Seneri
"Yesterday we got the final results from Paxton's tests. They found that
there are still Medulloblastoma cells in Paxton's body. At this point, it
doesn't change the course of action. They want to give Pax the next 3 months to
recover and repeat the scans then. Although this news leaves us disappointed,
we are not discouraged. God has brought us this far, and He will continue to
carry us through. We believe that Paxton's healing will come in His timing. The
doctor told me yesterday, he has seen a lot of things he cannot medically explain
with Paxton. He is a living, breathing miracle. Wouldn't it be awesome if they
repeat the scans again in 3 months and they can't find a single abnormal cell?
I believe it can happen."
Now faith is being sure of what we hope for and
certain of what we do not see. ~ Hebrews 11:1
August 15, 2011- Facebook post by Christi Seneri
"Thank you for all the comments, concern, and prayers. As most of you
know, Paxton's spinal tap still showed cancer cells in his spinal fluid. At one
point we were told our only options were craniospinal radiation (which causes
devastating long-term side effects) or nothing. We had no peace about putting
Paxton through radiation and how it would greatly lessen his quality of life.
At our last appt w/ Paxton's Dr., he had done a lot of researching and found a
brand new clinical trial that involved outpatient chemo only. Praise God, what
an answer to prayer! Since that time, Paxton has begun to show symptoms related
to the cancer: irritability, nausea, leg pain, and lethargy. We are taking him
into the clinic this afternoon. He has an MRI scheduled for Wed and port
placement on Thurs. His treatment is scheduled to start next week. Please pray
that God gives Paxton strength until that time, and of course, for his complete
healing. We refuse to stop believing! Our God is almighty and all powerful and
He can turn things around in an instant. Thank you to our family & friends
for your love, support, and prayers!"
August 17, 2011- Facebook post by Christi Seneri "The latest plan: Port placement and CT scans tomorrow. Then, Paxton will go through a short, localized radiation treatment to his lower spine Friday, and Monday - Thursday of next week. We could not afford to wait until next Tuesday to start the chemo trial and this is the quickest way to get things under control. After he completes the 5 radiation treatments, he will most likely go on a low-dose chemo plan. He is still not feeling well, but the pain medication helps quite a bit. Please continue to pray for strength, healing, and a miracle!"
September 17, 2011- Facebook post by Christi Seneri "Thanks for all the love. Paxton had a rough night. He had about 15 - 20 mild seizures and is now on a ventilator. MRI will be sometime today. They wanted to make sure the seizures were under control first. Oh, Lord, how we need you! A miracle is our only hope."
September 20, 2011- Facebook post by Christi Seneri
"Saturday we were told that once Paxton came off the ventilator, he would
soon pass. We called our family in to see our sweet boy one last time. Still,
Barry and I did not accept it. We said no. We fought. We prayed. We cried out
to our Lord (and so did our army of prayer warriors!). Shortly thereafter,
Paxton perked up, and after they tried to sedate him more, he started to try to
talk and pull at the ventilator. It was taken out and he has not even needed
oxygen since then. Tonight Paxton's vitals are strong and we are expected to go
home in a day or two. That was the third time that, according to the doctors,
Paxton "should have died". Surely, God has BIG plans for our little
boy. Now they say, we can still treat, but they do not feel they can cure
Paxton's disease. Well, of course they can't. BUT GOD CAN!!! Keep believing
Faith is being sure of what we hope for and certain of what we do not see.
September 30, 2011- Facebook post by Christi Seneri
"Thank you all for your texts, calls, and messages. Although I can't
personally respond to them all, we do appreciate each one. FB is just the
quickest way to get an update out without taking time away from my family.
- Paxton has had some more alertness over the last couple of days. He
enjoys getting outside more and riding in the stroller. His numbers and labs
all looked good at the clinic yesterday. He is still quite weak, tired, and
often has headaches and nausea. He is currently remaining on oral chemotherapy
which drs say will simply "slow things down". We are now working with
a dr from The National Cancer Research Center and will begin an alternative
protocol asap. Thank you for keeping Paxton and our family in your prayers.
With your support and the strength of Christ, we will persevere, we will keep
believing, and we will NOT give up!"
October 10, 2011- Facebook post by Christi Seneri
"Paxton's miracle is coming... he will soon be in the arms of our Lord
Jesus, healed to perfection. We have told him that his fight is over... go to
Jesus. Heaven is way better than Disney World.
October 10, 2011- Text from Christi Seneri "Paxton is at perfect peace. Thank you, Lord."
October 11, 2011- Facebook post by Christi Seneri "Sweet Paxton, I was so blessed to be your mommy. You taught me so much. How to love, how to fight, how to live. You have touched so many lives in your short time here on earth. I'm so proud of my brave little boy. Though I don't want to let you go, I am so happy that you can run, play, laugh, and be a kid again. I'll always carry you in my heart. See you soon, my best little buddy."
October 13, 2011- Facebook post by Barry Seneri Jr. Paxton, It was a pure joy to be your father. I’m so proud of you and have been eternally inspired by you. Just know my son that you carried your cross with bravery and courage. We all were created for God's glory and you lived that out to the fullest. I love you Pax and have been forever changed because of your willingness to live and die for a greater purpose!
October 11, 2011- Facebook post by Christi Seneri
"There is so much on my heart tonight, but I just want to say thank you -
for every message, every comment of love. It is beyond amazing to me how God
can use something so painful and turn it into something so beautiful. Sending
much love back out to all of you."
October 12, 2011- Facebook response by Christi Seneri
"We feel your prayers. God's grace is sufficient, no matter what the
circumstances. This is as difficult as one would imagine, and then multiply
that by about a million. But... what power, what beauty that is coming out of
this... The pain is temporary, but the fruit growing from this is
Paxton Seneri was the middle of three children born to Barry and Christi Seneri of Raleigh, North Carolina. Paxton was a typical, fun-loving 2 year old when he was first diagnosed with Medulloblastoma in December 2010. Paxton's family, in disbelief, held his hand with faith and hope as he began the journey of his fight with cancer. From that point on, his older brother, Braydon, and his younger sister, Lia, loved, hugged and cheered Paxton on through every step of his battle. He fought hard, he was brave, and he beat the odds on several occasions. Paxton has become our little hero.
We are currently in the process of looking for a volunteer to be our Director of Compliance. This individual would be responsible for making sure we are compliant with all IRS regulations. This person should be familiar with 501c3 nonprofit laws. If you are interested, please contact Christi or Barry Seneri at the email addresses listed above. Thank you!
Fight Like PAXTON is a 501(c)(3) tax exempt organization. Tax ID 45-3568974 Fight Like PAXTON, 13124 Six Forks Rd. Raleigh, NC 27614